Exile and Pride

February 28, 2006 at 8:53 PM (Assumptions, Body Image, Books, Cerebral Palsy) (, )

The above is a title of a really great book.

Someone else who loves language, who uses twenty dollar words with ease and uses them when five dollar words would do…

I hope to write about the places I know in Canada someday with the same rich description the author gives their home ground.

Someone else who has been pushed and pushed and pushed to do the supercrip deal, because that’s the image that the able are most comfortable with.

They’re an athlete because they want to be, not because they give a good damn about competing with the able.
I can’t fathom that because, well, pain hurts and I get no joy from exertion, no clean endorphin rush and jump while I swim or walk….but it’s interesting to read.

Other differences exist, but this book strikes several similar chords to my experience…good stuff.

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Watching ‘Murderball.’

February 28, 2006 at 8:44 PM (Crip Jocks, Murderball)


Something that shows people as *people* first and the disabilities kinda drag in behind as an afterthought…

I’ll keep my own counsel about what I dislike…because there’s so much in here that is just great.

Fierce competition

Playing just as hard as they train.

But I do feel sorry for them

Not for the disability

Not for the stress of competing

For the *horridly* lame-ass narration they had to endure during an educational video of sorts during their rehab time after spinal cord injury.

Good Gawd, rehab staff.

How about some *humor* or subject friendly narration!!!

Instead, some doctor bleats into a camera he is clearly afraid will morph into a gun and *shoot* him during the filming of the video…

The rest is just a giant lovely explanation of the *people,* their dreams realized, and their flaws.

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Minding My Business

February 23, 2006 at 3:58 PM (Blogging)

It’s amazing to me the different sources of persons or entities stopping by the site. Two or three by their city of origin or their type of business, when I go back and check their site, make me acutely uncomfortable. (But not uncomfortable enough to stop blogging, sorry. ) I have left off names of domains that by their frequency, location or source institution make me view them as ‘friendly strangers’ or those I know by location are actual online or offline location are my friends, and therefore worth both my trust and my protection of their ‘track’ across my website.

There are some on this list who don’t make me uncomfortable either, I’m just interested (and genuinely curious as to how they ended up here. )

1. Bethesda Lutheran Homes and Service

2. mail2.bracewellgiuliani.com (Bracewell & Patterson)
District Of Columbia, Washington, United States, 0 returning visits
February 23rd 2006
10:57:29 AM

3. mail.bristolllc.com (Alpine Resources)
New York, New York, United States, 0 returning visits
February 23rd 2006
07:30:54 AM
No referring link

4. cache-1.wall.soneralink.com (Sonera Ems (enabling & Management Services))
Finland, 0 returning visits
February 23rd 2006
05:16:51 AM
No referring link

5. (Rob Moore)
Colorado, Denver, United States, 0 returning visits
6.no-dns-yet.demon.co.uk (Emcor Drake & Scull Group Plc)
United Kingdom, 0 returning visits
February 22nd 2006
08:14:08 AM
No referring link

7. smtp.centerbrook.com (Fusco Corporation)
Connecticut, New Haven, United States, 0 returning visits

8. (Wayport Inc)
Virginia, Falls Church, United States, 0 returning visits
February 21st 2006
08:31:23 AM
No referring link
9. (Sbc Internet Services)
California, Chico, United States, 0 returning visits

10. pool-138-88-81-192.res.east.verizon.net (Verizon Internet Services)
District Of Columbia, Washington, United States, 0 returning visits
11. 67-22-165-17.chvlva.adelphia.net (Adelphia)
Maryland, Frederick, United States, 0 returning visits
February 19th 2006
10:21:31 AM
No referring link

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Sick Day

February 23, 2006 at 8:45 AM (MiCassa) ()

One of those ” I’m having so much stomach trouble, I’m not comfortable leaving the house.” Feh.

You fool yourself that you don’t actually have the disability/problem anymore because the medicine to control it is working so well.

It still shows up randomly, just once every two months instead of once every two weeks…I should just be grateful.

I’m eating so little during the workday, I certainly can’t cut any more there (what’s less than two cups of unsweetened soymilk ? Double Feh.) Evidently three olives and four crackers at a work “town hall meeting” is too much food.

And lets not forget the massive amount of calories in another glass of chocolate soymilk and the “huge” portions of Lean Cuisine (she said with heavy sarcasm)

It’s been nearly two months since my last day off…It’s my understanding this won’t affect my job…let’s hope I’m right…

But, now that I’m here

Go on over to The Ragged Edge for some interesting debate on words, labels, and why conversations lose their steam when able people are asked to debate disability discriminaton…great discussion…Comments are now part of the site, so c’mon folk…speak up !

And, a moment for politics…first I post a caveat that the source of this is a former top aide to President Clinton…this is still a thing that makes me go hmmm.

It seems to give a legal basis for something many have felt all along…that the Vice President has more influence, power and *control* than any of his predecessors.


We now have a federal version of MICASSA “The Money Follows the Person” Act that will roll out over forty states,

1. Saving the government money (Why aren’t the limited goverment folk cheering?!)


2. Allowing more disabled people to direct ther funds towards community services to avoid being placed in an institutional setting in the first place, or, move from such a setting into the community…

The doors are coming open in the next three or four years: So, the able best get used to discussing disability at the water cooler, because they’ll be seeing many more of us out and about…

Unless of course we have so much stomach trouble we cannot leave the house…grumble, b!tch, snark

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Waiting in the "Wing"s

February 19, 2006 at 3:14 PM (West Wing) ()

Beginning in March, the sometimes ignored, often excellent, seriously preempted “West Wing” will begin to answer the question of who wins the election between Santos, and Vinnick, the two contenders to replace “President Bartlett” when his term ends.

This will be the last season of the show, that probably would have come to a graceful end anyway this year, but was thrown a real-life curve by the death of actor John Spencer who brought chief of staff “Leo McGarry” to life…I always thought my dad would have gotten a kick out of this actor, who both on LA Law and West Wing made his characters recovering alchoholics, creating an image of an addict who faced down the demons and then proceeded to live a successful, strong, opinionated life.

I liked the show most in it’s earliest incarnations, when Aaron Sorkin was still with the show, but still found plenty to interest me in its latest version…

Evidently the results of the election are “in” on April 9th.

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