In which Imfunny2 considers changing

March 26, 2009 at 11:52 AM (Uncategorized)

her name to imstupid2…

We knew the blizzard was coming. Tuesday was colder but clear, as was yesterday.

My disabilities/impairments mean I take a lot of medications…I was running low on an essential medication, but didn’t think about it and this am I had one left.

You have to be a special kind of stupid to have the blizzard warnings two days in advance…

and not get the meds.

It’s the roomate’s day off. They had to go out to the drugstore in the middle of a blizzard to get it. (drugstore is seven minutes drive, so they got home..)

And now…in this high end apartment that we pay ridiculous rent for…the snow is going sideways through the (side) crack between the door and the frame (the bottom is weatherstripped.) my vintage 70’s side tables are getting wet…covering them with towels…

My roomate has a favorite chair. That (and the roomate) are also getting wet.

I’ve offered my favorite chair.

they declined.

Looking out at the whiteout…I’m tempted to be homesick (we got these kind of conditions around the Great Lakes after all)

But the two things that are purely Rockies….

The amount of accumulation expected…18 inches in Metro Denver
And the time of year…spring…. (12 inches so far…)

and up to 2 feet in the mountains or the communities in the lower foothills (Evergreen Conifer, even perhaps Golden)

Jeebus.

Denver is getting into a pattern with these uber blizzards.

2003 2006 2009

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Finally…

March 24, 2009 at 3:35 PM (Uncategorized)

a concise explanation of what ‘disability’ means and does not mean, and the reasons it can vary…. The money ‘graph…

It all depends on supports. If your caregivers are responsive and willing and able to support all your needs, your disability becomes a minor, almost social/cultural difference, like hair color or left-handedness.  You can contribute in your own way, as everyone else can.  But if you don’t have good supports, that same person may end up with repeated illness, lying helplessly on their back, unable to contribute.  The banker who made $100,000 will make $0 and live in a dim nursing home without the support of his assistants.  Suddenly, he is MUCH MORE disabled than the basement guy (who at least always has choices).  Suddenly, it’s not a social/cultural difference the banker has the luxury to debate; he is watching his peers contribute and benefit in society while he’s unable to leave his room regardless of his wishes, and the cultural assumptions of his inability have become true, a prophecy fulfilled by the system’s outdated model. He’s suddenly very different, and it’s not cultural at all.  It’s a real,  difference, and a huge barrier.

h/t to Wheelie Catholic

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Self-Advocacy, and a moment of kindness

March 24, 2009 at 3:14 PM (Uncategorized) (, , )

Going to the dentist.

Going to the (new) shrink.

Going to the gut doctor.  (and calming down the PA, that no, honestly, I have no symptoms of colon cancer…none of the telling stuff.

The symptoms are serious, yes, but no wonky blood cell count, no blood anywhere..no fever, no weight loss that is not planned for….)

Scheduling diagnostic tests…

Requesting proof of income letter.

Going to the primary care physician.

Proving I meet the “cannot perform all activities of daily living unassisted” standard.

Applying for Medicaid.  (such fun)

I did make it to church last weekend without getting gut sick.

[I haven’t made a big deal about the sickness over there…but the speaker/officiant didn’t need to squeeze my shoulder in support on their way to the pulpit the way that they did…or actually hug me (carefully) as I waited for the gimp bus to go back home…but they did.

It made me pretty (privately) emotional, a relative stranger just being nice.

But I digress.

What I meant to say was…This ‘being on disability’ thing is it’s own freakin job!

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Another Day Another Healh Care Provider

March 23, 2009 at 10:40 AM (Uncategorized)

First floor of their building — check…accessible…check….
cash only…check…cannot submit to Medicare because they don’t take Medicare…

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Oh, no you don’t….

March 20, 2009 at 5:34 PM (Uncategorized) (, , )

Forgive me for speaking out of turn Governor Palin:

I understand that part of the package of stimulus funds you’ve chosen to reject includes funds for education…which includes, as a subset, funding for the education of children with disabilities…

Didn’t your baby with Down’s Syndrome figure prominently in the campaign as a great plus for you when you said: “Parents of children with special needs will have an advocate in the White House?”

I do remember you saying it and I also remember telling people at the time “Hey, criticize her for what she *doesn’t know* about foreign policy or [as it turned out] the reading habits she didn’t have,,,…but not about her choice to have a child with cognitive impairment.

I take back the points I gave you.  If you call yourself any kind of advocate for parents of and children with disabilities in Alaska…rethink your position.

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