I was going to jump into a

August 24, 2006 at 7:39 PM (genetic testing) ()

troubling and fascinating debate here.

but it’s late and I’m tuckered.

So, I’ll just say this.

I’ve known many disabled persons who were so incredibly clued in that their life was happiest and best just as they were.

It’s these folk that I feel are profoundly threatened by the ability of widespread genetic testing for many genetic conditons.

Are we going to accept and work hard to integrate the “diversity” of those that are here now, and yet work like heck to ‘test’ many conditions seen as “disabilities” out of the next generation? Striving mightily for ‘perfection’ has been a large part of my family emotional landscape and it *did* in my case, often feel like disrespect of my difference.

If I had aquired only the single disabling condition known diffferently as ataxia, ataxic cerebral palsy, cerebral palsy or spastic paraplegia and *that had been it* I’d find myself completely in accord with the “i’m perfectly fine just as i am thanks.” It’s important also to note that cerebral palsy is *not* genetic or inherited[snark at the ex boyfriend who was dying to put the “I’m a victim of genetics” label on himself. NO, IT IS NOT A GENETIC CONDITION I’ve been waiting eight years to win that argument 🙂 ]…Just one of them things that happens.

But then, the rest of the crew piled on, and with familial tendency towards depression and addiction and cancer…

I do find that I wish that genetic “counseling” (note I did not say ‘testing’ ) had been in common use before my parents got together. *before* there was any meeting of genetic material of any sort.

Some honest doc who just wanted to sit down with the both of them and say…”now, based on your medical histories I see these as possibles that any offspring you might think of creating might have to struggle with. (depression, addiction,and cancer.)

If I had a time machine and I could go back to say, 14 months before I was born and say….

“Look, I’m your kid. I’ve had a really interesting life up to this point as a matter of fact I was born with a disability and that particular one shaped my experience but in the long haul it wasn’t the negative it was cracked up to be. But there have been a few more… I can tell already that the next forty years or so won’t be fun for you or me.

So can we just *take a pass?* Just don’t do it. No one would have to fight about choice, the right to decide whether or not to conceive, when does life begin, and what sorts of lives have value and are there any that have less?

Just go pair up with two other different people and make kids with them. Do *not* put this particular genetic mix into the mixing bowl…

I would say that if I could.

I’m just as valuable as the next person, yes. But sometimes, way too ***ked up for my own good.

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Vicious *itch.

June 12, 2006 at 6:10 PM (Rightward Pundits) ()

Ann Coulter needs to STFU. She never will of course, she loves the sound of her own voice.

If conservatives have a problem with the specific 9/11 family members she mentions…

Difficult events in one’s life are *transformative.* I also submit that difficult events in one’s life are *transformative* beyond the person’s ability to *stop* the transformation.

I think if any of those four women were approached about having hired publicists, spoken at Democratic campaign events etc. and asked “Off the record ma’am, aren’t you getting a real positive jolt about having to endure the public eye, after losing someone? Don’t you sit up until 4 am chortling with bitter malice about your situation and mutter “I’m going to make someone pay?” Aren’t you having great fun with this,”? all of which Coulter is insinuating. Of course the ladies would look at the questioner with anger or contempt or pity, and say hell no.

To Ms. Coulter I say. “Stick to politics, little store mannequin. Let the boys in the back room pull your strings and enjoy the view.

When you lose a loved one suddenly I don’t want to hear a single word out of your ignorant, pushy, prideful, vicious, careless, nasty, glossy pampered, entitled, spoiled, arrogant *useless* mouth.”

Horowitz, also is mouthing off defending Coulter this evening on Larry King

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We hate telethons

July 9, 2005 at 8:46 PM (Uncategorized) (, , )

and,

Top Ten Ideas/Attitudes that need to change.

God does not give the disabled their conditions as some kind of sick test, nor is visible or invisible affliction a sign of a lack of faith or deep sin. (Some of us have ditched a faith or belief system at our own option. That’s different).

We’re not saints either. Lessee, a certain filched closet, twelve cream ales in three hours, (or, six Long Island Iced Teas in a club off of I-271 in Mayfield Heights Ohio, various road trips, romances in the most unlikely of venues,) etc. etc. which leads me to the third, most annoying myth.

We Have Relationships–so lay of the pity for that one y’all. It’s truly annoying as well as devoid of factual basis. Your humble blogger was Married For Real (although the maternal parent could never stop acting as if we were playing house) Then came widowhood. The three years between 1993-96 were as much of a dating variety nightmare as any able woman. Really. For a male perspective go watch the movie Murderball. Review says: “Women love quads. Quads love women.” Further than that I shan’t go. Go see the flick.

We do have it harder, and sometimes we bitch and moan about it. It’s not all achievement all the time.

Some of us are athletes and damn good ones. Same movie as previously mentioned.

If we have jobs and insurance and homes, it’s because we earned them, so stop being so damned insecure and snarking behind our backs that we only got the job because of the disability, or are being coddled and given half-measures because of it.

We are not sitting around waiting for a cure. Now, if one came along, we might investigate it. But we have things to do.

We’re often as smart, or smarter than the rest of you. Quit punishing us for it.

Yes, we are in line. So stop looking over our heads for the next able bodied customer.

Even if you don’t see us, we see you. So if you do something stupid, or silly, or asinine in front of that invisible person in the wheelchair, don’t be surprised if that person in the chair takes note of it, for use later. Being invisible does occasionally have its advantages.

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