March 20, 2014 at 7:52 PM (Uncategorized) (, , , )

so. its high school. My friends and I are sitting around at my house debating what to do that night it was a group of at least four people and probably more.

My best friend at the time came up with an idea, “Let’s  go roller skating!”

I raised my hand and said rather sarcastically, “Hello,  I can’t do that,” and she got this look and burst out laughing, “Oh my gosh, I forgot! I forgot you couldn’t do that!” They hadn’t made me invisible or forgotten I was there, they had simply forgotten my disability for a moment. we went off to do something I could do and I appreciated that very much.

my best friend of those days and I aren’t speaking anymore and that’s a good thing for me for reasons that have nothing to do with this post.but I want to give her credit for having a very involved idea and a very young age that disability is something to be included not excluded.

the only thing I feel bad about looking back to those days since I’m much much older now is this:  Did my group of friends  miss out on things they would have rather done that were more physically involving like sports  or going hiking in a park because I couldn’t do those things? I wonder about that because I didn’t have the self will at the time to ask them did you ever get to do those other things the roller skating the hiking perhaps at a different day and time when I wasn’t around or I wasn’t interested so that you could go do them and not miss out.  I hope so. Because during those days, everyone should get to do the things they want to do.

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I know, I know… You thought I was dead.

March 20, 2014 at 2:09 PM (Uncategorized)

no I’ve been in captivity for the last 5 months and  disinclined to blog  before that. I have lymphedema now as many of you know and one of the things you can get from that he’s a medical condition called cellulitis. It became life threatening. I was rushed to the hospital. Now I’ve got nerve damage and my right leg was not a banana split sundae of well working equipment to begin with. I have had to relearn  sitting up in bed, trying to stand, trying to move back and forth in the bed etc . Here in the rehab hospital I’ve had to make sure that my customer service face is always on and stay nice to people so that I get appropriate care. nice is not my default setting. Its been a mixed bag which I need to wait and write more about when I get out. Hopefully soon. hopefully April 3rd.

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