Holy Election Batman!

April 16, 2008 at 5:39 PM (Uncategorized) (, )

Bumper sticker of the day, spotted going home…

Not McCain
Not Obama
Not Hilary Clinton

“Harvey Dent for Gotham City”

Loved it.

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Shall They Dance….

April 12, 2008 at 1:10 PM (Uncategorized) (, , , , )

I’ll own this…as purely my own perspective.

There are three things I love watching. Three things that you don’t just have to be “able” to do.

You have to be some kind of extraordiarily able person to do.

And another stereotype shot down.

I’m not bitter that I can’t. (I might have been a bit sad about it as a very young kid, but I’m speaking from an adult’s perspective)

Gymnastics fascinates me. The ability to twist and climb and turn and land exactly correctly. Without falling or slipping. Human body as arrow, sail, drill, whip.

It’s magic to me.

Equally magic and slightly more relatable.

Figure skating. They dance on a narrow blade on a buncha ice.

That’s what my *walking* in wintertime felt like, and they performed while doing it. Another “How in the **** do they do that?”

Puzzlement mixed with admiration.

And the last, dancing.

I did my version for a good while and now cannot at all.

But routines in American musicals continue to compel me to watch. But I *don’t* waste my watching time wishing that *I* could. You lose out on athleticsim or technical brilliance or pure emotion-expressed-as-movement. A technical dissection of method, or shoes or costumes or actors or dancers-who-could-also-act, or just-good-dancing.

I also believe that many many other PWD’s don’t sit around being bitter all day about the sometimes marked physical ability differences between some of us, and those called able.

There’s really too much else to do or discuss or understand.

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Stand up…

April 10, 2008 at 7:15 PM (Uncategorized)

George Carlin has said he believes that any individual parent shouldn’t automatically garner respect. That they should have to earn it.

I agree in some cases.

There’s discussion on other blogs I read about what kids learn when they’re hit.

I was hit, the last time when I was three.

It was an out of control spanking.

No more hitting after that.

But, from my father, beginning when I was ten, nearly constant yelling. Four nights out of seven.

Mulish, stuborn, had to have you agree with his insane made up stories. Especially when he’d had too much [gin,vodka,scotch]

And the “You’re (any negative adjective you can think of)

Hideous cruel and insulting, these would wash up against the brick walls of myself and my mothers sense of worth, that we had built out of our individual strengths…and crack at them and pressure them to split or even break.

And I wouldn’t roll over and agree. I’d fight with him, almost from the beginning.

Mom begged me to stop, because me standing up for myself just added fuel to the nasty things he’d say.

My perception was, I couldn’t help it. I had to fight him verbally. Tell him enough times that he was a jackass and perhaps he’d get it.

It came to a head when I was 17. he barrelled into the room convinced I had not done a chore I *had* done to the best of my ability.

“You little sh!t!” He raised a fist. “I ought to…”

I did some calculation in my head. I had the wrong headed idea that if he *did* hit me, it would only be to injure, and then well, I’d just call the cops on his ass. Jailtime was worse than bruises, and I felt he needed some.

I was a girl with CP. I had no ability to fight. Just bravado. I actually *said* [yeah, mindnumbingly stupid….]

“Come on! I’d like to see you try it!” Defiant. With absolutely nothing to back it up.

And then, the real person under the alchohol surfaced a bit. He started crying, and backed off.

I don’t understand where I got the sense of self or ability to stand up to it.

I just did.

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A film to check out

April 9, 2008 at 6:01 PM (Uncategorized)

“The Music Within”

is the story of Richard Pimbertel, one of those involved in the passage of the ADA.

The review is interesting enough in itself, stating that there needs to be more conflict in the film, and that (italics mine) the obstacles that the main character faces are too easy to overcome

In otherwords, the film was less interesting since the main character’s obstacles should have been more obviously difficult and that more strain should have been shown in overcoming them…

I don’t know if film portrayals of disability can win anymore. Either we’re too grim and depressing “Nobody wins,” said a writer relative of mine, or we don’t ‘suffer’ enough.

I’m going to rent the film and see what’s what.

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April 6, 2008 at 7:50 AM (Uncategorized) (, , , , , , )

Here, someone tells us that patients with an illness condition or impairment, shouldn’t bring their informed stories to the campaign trail…

just hope that it [cancer] doesn’t become a common occurrence on the campaign trail. The cancer conversation is best left to the experts, researchers, and doctors

Just for the record: This guy works for the candidate that wants to exclude anybody with a preexisting condition from his healthcare plan…..

(update) Countdown had Elizabeth Edwards on tonight to discuss this….She supports Clinton’s plan over Obama’s and details that preexisting conditions would be not be covered under McCain’s Plan

People *with* conditions/ilnesses/impairments: ….Are People! People with rights. People who vote.

When I was a person newly diagnosed with cancer, the person who made me decide to seek treatment and live…was a survivor! A woman on the other end of a phone call from the American Cancer Society who explained what my options might be, the downsides and upsides of treatment…and who laughed a lot.

John McCain gets to speak about cancer. He’s had it.
Elizabeth Edwards gets to speak about cancer. She has it.

Mr Malek, *also* gets to speak about it, he’s involved in research.

But no one gets to dictate what patients can and can’t speak about.

If people with ilnesses or impairments (they are different) don’t speak about their experience during an election year:

Lives won’t improve
Lives won’t be saved.

And policy makers in a position to improve quality of life or even life expectancy won’t get eletcted.

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