Mental Illness, Cycling, Responsibility
I’ve been looking back over the past three years or so…
It’s fairly clear that the windows of effectiveness for new meds or strategies to handle what I percieve to be an anxiety disorder are shortening.
It’s not that they aren’t efficacious initially, it’s that the time between “Yes, this is helpful,” and “Ok, this isn’t working, lets look at other combinations….” is decreasing. I have meds now, they’re holding me above water, but situationally, the head’s in a bad way.
I’ve seen family members on both sides be left without recourse, mentally speaking, when the bottom fell out, either by denying anything was wrong, or delaying help, or in one case outright abandonment.
I have a great aunt I was very fond of…
When I think of my connection with medications that help, or my present search for help *before* I get into a situation….
I’m very grateful that I’m not that great aunt in 1935.
When my father died I recieved a box of his personal effects.
In it were a small amount of correspondence, a young man’s picture and a wedding announcement concerning my great aunt.
I’ll call her Jeanette and him Bill.
He was a handsome young man per the small picture. My great grandmother seems to have had reservations about him for her daughter, but was never explicit about what they were in the correspondence I read.
Jeanette and Bill were married in 1935. Jeanette may or may not have had diagnosed depression at anytime prior to the wedding. The newlyweds either lived nearby or with Bill’s mother.
He left when war came.
And, when the war ended, he did not permanently return. I don’t know if he came back for a short time and left again. What I do read in the letters is that apparently without benefit of divorce, he abandoned my great aunt, went to New York City and found a second partner, and he was listed as working somewhere in the Empire State Building in 1948. He also ceased to communicate with his mother. Whether or not my great aunt’s depression was present, and part of what influenced part or all of his decision to leave, it manifested in an extreme way in the years after they ‘rediscovered’ where he was.
She sends him lucid letters at first gracious even, a gentle bewilderment couched in educated language, pleading on behalf of his mother and herself, asking for an explanation, a reason, any construct that would let her understand why he left.
There is no answering correspondence from him.
(I assume he’s dead now. If I ever had hope of finding that guy, before he died, his new family would have been embarrassed beyond belief, and he would have been the worse for wear.)
Two years later, letters show a sharp drop in the physical ability to print or handwrite neatly (the style of handwriting looks worse than mine when I was eight, and my cerebral palsy affects that.)
Then, there are discussions my great grandmother wrote to medical persons about the state of my great aunt’s mental health….my great aunt lived with my great grandmother as of at least 1950. My great grandmother did what she had to do to support my great aunt, but clearly indicated in correspondence to her (it’s telling that they couldn’t talk about these things but had to write them out….) that it was time that Jeanette became self supporting.
Jeanette became my great grandmother’s primary caregiver, while holding down a job at a steel company….(an office post of some sort)
My great grandmother, as I’ve written before, was a dominating, strong, intense personality. It had to be emotionally draining, to accept over time that Jeanette’s job (s) in life were a ‘job’ not a career, getting intimate with a typewriter and then caregiving on the evenings and weekends. There were no children.
Jeanette did take a stand about two things, though and I think, along with treatment or meds (I don’t have details on those. ) there were two avocations largely responsible for her long stretches of ‘acceptable’ mental health during the next thirty years.
Birdwatching, and extensive travel on her own.
Once she was working and handling her share of expenses, I imagine either she put some funds away for this or was helped to do so by her mother…who didn’t strike me as so self-absorbed that she wouldn’t see the lonesomeness or diffiulties of her daughter’s postition.
It is my understanding she had a relapse in 1965. I never saw her during those times….by 1967, she didn’t mind being one of several famillial baby sitters that saw me perhaps once a week….
She saw Asia, the Phillipines, Easter Island and other places on her own…and loved to show pictures or tell stories about these places to friends at the nearby Presybyterian church, or to me….
I think she wished my eyesight were sharper, because she could detail a species of bird at a moment’s notice and by the time I could track toward the tree, the bird would often have ‘dissapeared’ or moved.
When my great grandmother died in 1979, or 1980….
Jeanette fell into an extreme depression from which she did not recover….
This type of depression is quite prevalent on *both* sides of the family tree.
My alcoholic father became trustee of Jeanette’s estate….which he partially looted. (His moral nadir.)
She had to be placed in a skilled nursing facility, where she died in 1991.
I’m trying not to be any of those people, or others who even under care, actually grew violent in their old age… I’m trying to adress these issues proactively, so I don’t see that level of destruction in my cognition, now or later.
She deserved better, damnit.
We all do.
Things done, but not assigned a value.
A bad day today. It’s for no apparent reason. The depression, still pulling at me.
But some real choices will need to be made soon.
The things I’m good at, no one will pay me (a salary) for. (Comedy. Writing. Singing. Asked for advice.)
The things I’m fair at, I have a chance to be paid, but being in the middle of the able again feels like endless pressure to improve that my head is not ready for.
My capabilities feel outside of the realm of taking 40 calls, and answer ten emails and mail fifteen forms and process twenty faxed or emailed changes *correctly* in seven and a half hours.
When you are 46 you are supposed to be able to make correct choices yourself.
Either choice, working or not, seems a different load of useless wrongness right now.
Used to be…
I don’t know whether I should blog on this, but I will anyway.
I need to put it out there in case things come out difficult for me.
My medicine for depression/anxiety has gradually become less efficacious; I’m on a new medication that will not tell it’s efficacy for another month.
It is frightening when your emotions end up running you.
It’s as if your former self is watching and observing.
As you withdraw from what you fear.
As you, who used to be social, withdraw from anyone you do not already know, because you literally fear to speak to them.
You cry often, over things that make no sense to others.
When you are not terrified, you are angry, taking it out with a potty mouth and broken inanimate objects,
But you have enough sense left to seek medical help and get the medicine altered.
For the job I do, my emotions *must* be in my control for eight hours on the phone. I cannot have a thin skin, I cannot raise my voice, I cannot have a schoolmarmish, lecturing, brusque, weary or exasperated tone, *especially* if customers seem to me to *be* wearying or exasperating.
Those are metrics measured for my performance, not just common sense.
And *on my good days* I find that extraordinarily difficult,
Being nice to people and listening to their concerns is not in fact, *intrinsic* to my nature. I’d rather just explain the problem and fix it without making nice. I do it though, because I am capable of learning and it became a learned behaviour for me.
I submit that since it’s a learned skill and not a natural gift for pleasantry over the phone (which the roomie has in *spades*) it makes it more difficult, even on good days.
Part of my job is to *act as if* I’m cheerful and ready to fight whatever battles the customer wants me to fight for them within company policy.
Right now, I do not run my emotions…*they run me* and that makes me bad phone material.
People who don’t believe there is any such thing as mental ilness believe that every emotional state or action is a conscious choice.
I’m sorry to disagree. A chemical imbalance can be observed, but has to be acted upon medically. If there are situational *aspects* to the depression, therapy helps with that sometimes, depending on the patient, and the therapist.
My emotions take me to completely different places when my meds aren’t working, so that I don’t much recognize myself.
All In Your Head
This post is a genuine attempt to map the various impacts that I experience as part of an ongoing ebb and flow of what a layperson might label depression. My firm belief is that it is chemical, and produces mental and emotional states, and from them perceptions and decisions that are too often flawed…independently of whether my life actually sucks or not. (Objectively in my clearer moments, it does not suck. I have a roof over my head, I eat twice or three times daily…and I am still in contact with most friends and family)
Always: Focus…concentration seems to be forced to the side by medication, when medicated and thrown aside by emotion/anxiety when not medicated (last time I was “not medicated” was December 2003.) Volatile emotion shows up often in my private discourse, even while on meds.
The “knot of dread” has reappeared in my stomach for any and all public activity. Even while on medication, I am anxious when targets, goals, requirements, social events, public performance (singing) are set for me…and I don’t meet them…beyond what’s usual. Physical symptoms then, when affected by the mental stuff, ratchet up suddenly and I have as little perceived control over them as I do at this time over the mental emotional business…
Staying inside lowers both the mental and physical by products of this extreme anxiety, but all it does is swap itself out for a continuous mental loop of self-blame,failure etc etc, boring endless…And, since I don’t mark it much, I always have to remind myself that if the dark months of the year are tougher, there are genuine pieces and reasons for this, what the EvilExBoyfriend simply labeled “The Dark Time.”
I am also failing to come to terms with other totally physical symptoms that continue to impose random, frequent hiding inside the house, difficulty with offline scheduling that puts a dent both in the quest for what they call Substantial Gainful Employment, and some semblance of a social life. dehydration, constant mild discomfort that jumps up to extreme discomfort with about 15 seconds notice. They happen. They can be lessened. But they won’t completely stop.
Writing, correct eating, and social interaction with the small group of persons who have known me a *long* time, and thence, that I trust along with the correct medication…eases these things. And, I try always to sit myself down and read some rationality over these impairments: I didn’t ask for them, I didn’t ask for the results of their interaction, and any outside observer who uses a “whining” label, is quite free to do so. They are also quite free to remain profoundly ill informed…no big deal, because, let’s face it, no one likes to talk about this stuff.
My impairments are in many different places besides “my head.” But I do wish that said head would cease it’s near constant ability to make them “worse.”
A great list of writing about impairment
Hat tip to book girl and the No Pity Livejournal group listed at right:
Since I’m a relative newbie (a year and a half in) to being interested in discussing disability publicly, I’ve been looking for a list (or lists) that would allow me to go to my local library (or buy out of country stuff since the journaler is in Austrailia) that would allow me to play catch up a bit.
Those with Livejournal can read that list here. I can’t thank the original livejournal person, Book Girl enough. The copy/paste version is below:
Fiction
So Much To Tell You – John Marsden
(Acquired Physical Disability – Australian)
Apprentice Devil – Lisa Vasil (Epilepsy) and Dark Secret (Vision Impairment)
Gridlock – Ben Elton (Cerebral Palsy and Paraplegia)
Skallagrigg – William Horwood (Cerebral Palsy)
Stones From the River – Ursula Hegi(Short Stature)
The Little Country – Charles de Lint & The Onion Girl (both Acquired Mobility Disabilities)
Blood Songs – Penelope Rowe(Manic Depression – Australian)
Bone Truth – Anne Finger(Polio)
April Witch – Majgull Axelsson(Cerebral Palsy)
Not In The Calendar – Margaret Kennedy(Hearing Impairment)
The Deptford Trilogy – Robertson Davies(Physical Disfigurement)
The Poisonwood Bible – Barbara Kingsolver(Hemiplegia)
Non-fiction
Mother to Be: A Guide to Pregnancy and Birth for Women withDisabilities – Judi Rogers and Molleen Matsumura, eds.
Women with Disabilities: Essays in Psychology, Culture and Politics -Michelle Fine and Adrienne Asch, eds.
With the Power of Each Breath: A Disabled Women’s Anthology – Susan EBrowne, Debra Connors, and Nanci Stern, eds.
Mustn’t Grumble: Writing by Disabled Women – Lois Keith, ed.
Encounters with Strangers: Feminism and Disability – Jenny Morris, ed.
Past Due: A Story of Disability, Pregnancy and Birth – Anne FingerVoices From The Shadows:
Women With Disabilities Speak Out – GwynethFerguson Matthews
Claiming Disability: Knowledge and Identity – Simi Linton
Living Outside Inside: A Disabled Women’s Experience – Susan Hannaford
Different But The Same: Young people talk about living with seriousillness – Heather Cameron(Australian)
The Rejected Body: Feminist Philosophical Reflections on Disability -Susan Wendell[My note: The Rejected body was my introduction to reading in this field, and I still go digging around in it from time to time. ]
Women With Disabilities: Found Voices – Mary Wilmuth and LillianHolcomb, eds.
Exile and Pride: Disability, Queerness and Liberation – Eli Clare(Lesbian Issues)
Restricted Access: Lesbians on Disability – Victoria A Brownworth &Susan Raffo, eds.
(Lesbian Issues)
With Wings: An anthology of literature by women with disabilities -Marsha Saxton & Florence Howe, eds.
Carnal Acts: Essays
Remembering the Bone House: An erotics of place and space
Waist-High in the World: A Life Among the Nondisabled
Ordinary Time: Cycles in Marriage, Faith and Renewal
Voice Lessons: On Becoming a (Woman) WriterPlaintext: Essays – Nancy Mairs
Oyster Grit: Experiences of Women With Disabilities – Victorian WomenWith Disabilities Network(Australian)
Pride Against Prejudice: Transforming Attitudes to Disability – JennyMorris
Lives Worth Living: Women’s Experiences Of Chronic Illness – VeronicaMarris
The Sexual Politics of Disability: Untold Desires – Tom Shakespeare,Kath Gillespie-Sells & Dominic Davies, eds.
Female Forms: Experiencing and Understanding Disability – Carol Thomas
Women with Physical Disabilities: Achieving and Maintaining Health andWell-Being – Danuta M Krotoski, Margaret A Nosek & Margaret A Turk
Auto/Biography
Annie’s Coming Out – Rosemary Crossley and Anne McDonald.(Cerebral Palsy – Australian)Recovering: A Journal – May Sarton(Depression)
After the Stroke: A Journal – May Sarton(Stroke)
Bird and other Writings on Epilepsy – Susan Hawthorne(Epilepsy – Australian)
Listening: Ways of Hearing in a Silent World – Hannah Merker(Hearing Impairment)
Just An Ordinary Kid – Lisa Vasil(Cerebral Palsy)
An Unquiet Mind: A Memoir of Moods and Madness – Kay Redfield Jamison(Manic Depression)Daughter of the Queen of Sheba – Jacki Lynden(Manic Depression)
Spasm: A Memoir of Lies – Lauren Slater(Epilepsy)
Autobiography of a Face – Lucy Grealy(Facial Disfigurement)
I, Alison: Reaching for a Life of My Own – Alison French with VeronicaGroocock(Cerebral Palsy)
An Iranian Odyssey – Gohar Kordi(Vision Impairment)
Somebody Somewhere Nobody Nowhere Like Color to the Blind – Donna Williams(Autism – Australian)
Rusty – Carol Gino(Epilepsy)
Why Can’t Sharon Kowalski Come Home? – Karen Thompson and JulieAndrzejewski (Acquired Head Injury & Lesbian Issues)
Since I do not fit the profile of the “Compleat Feminist” or even the “Compleat Crip” I differ with some building blocks of some of the arguments of the tomes I have read in the Nonfiction section, but even the collections/books I see as very divergent from my own have a great deal to tell me, or anybody who reads em. If your library or bookstore doesn’t have them check out your local university’s “used textbook” section…you might find some older out of print copies. The out of country stuff is harder to get but even that is not impossible.
